Tuesday 6/12/18 @ 2:30am

#ItsJoTime

There have been three times in my 35 years that my life has flashed before my eyes. One involved an unfortunate run-in with a black bear camping in Arkansas, one was a close call while driving a go-cart in New Orleans, and one was today when we realized that Josephine’s symptoms were worsening. The biopsy plan was a good one. Get more info. Be cautious with treatment. The problem is that we are small, and our plans are laughable. Life continues on, as John Lennon would say, despite them. So today, we called the whole thing off. This tumor is moving and we’ll be damned if we’re going to let it get ahead of us. You know I like winning and Josephine is that on steroids. (Literally, she’s still on steroids. Please send help.)

The current working idea is that we’ll do a few procedures in the next day or two to get her ready for radiation and chemotherapy, which we want running by Thursday. Let’s forget if this beast is low or high grade, let’s make it no grade. New request: we pray for two good days and schedule ease with our phenomenal oncology team. And keep the distractions coming! Bracelet making (thanks Lori Vess Cantabery) with her best friend, Eleanor today, with visits from Elizabeth Guenther McMillan, Brett and Eleanor Parker, Katye Manz, Katherine McCarty, and her teachers, Janette and Yvette Breveard were amazing!

There were some scary moments today. I like working a plan. I don’t like not being in control. (You can all get a good chuckle there.) My family, particularly my amazing partner in everything, Ryan Wrenn, is my rock. The wonderful team at Children’s is also a blessing.

We had a DJ session today and Jo’s song choice was “Shake it Off.” Damn right girl, get to shaking. #ItsJoTime –CHW.